Tuesday, February 26, 2013

I Live With This EVERY DAY

When someone asks me, "How are you doing (or feeling)?"  I NEVER tell them exactly how I feel because I just might scare them away.  If you know someone who suffers with Fibromyalgia and just cannot understand why they feel so bad - well please read on....

Pain All Over – People describe fibromyalgia pain as deep muscular aching, throbbing, shooting, stabbing, or intense burning. Muscle groups used the most may hurt more. In addition, the severity of regional pains can make your fibromyalgia symptoms worse.
Fatigue – Exhaustion can be one of the most incapacitating fibromyalgia symptoms. You may feel as though your arms and legs are weighted down by concrete blocks and your body may be so drained of energy that every task requires great effort.
Sleep Difficulties – It’s not just about falling asleep. Repeat arousals prevent you from reaching deep, restorative sleep, so you wake up feeling as though you have been hit by a Mack truck.An overnight sleep study may show symptoms of repeat arousals, but a specific sleep disorder may not be found.
Brain Fog – Trouble concentrating, retaining new information, and word-finding are common fibromyalgia symptoms that seriously interfere with daily functioning. You may be easily distracted and this symptom appears to correspond to the severity of pain (as though the brain is consumed by the pain, limiting your ability to perform cognitive tasks).
Morning Stiffness – You may wake up to enhanced muscle soreness with fibromyalgia, but you probably also feel more stiff than usual. The cause of these muscle symptoms is unknown, but warm water and gentle stretching usually help alleviate them.
Muscle Knots, Cramping, Weakness – No matter how much you try to relax your muscles, they may feel tense. Many contain rope-like knots called myofascial trigger points, making you more susceptible to muscle cramping and weakness. The pain of fibromyalgia may also be a source of muscle weakness.
Digestive Disorders – Constipation, diarrhea, abdominal pain, gas and bloating, irritable bowel, and nausea are found in roughly 40 to 70% of fibromyalgia patients. Acid reflux and a slowed digestion are also common.
Headaches/Migraines – Recurrent tension headaches or migraines are present in 50 to 70% of fibromyalgia patients. Headache symptoms are usually rated as severe, occur at least two times per week, and often have a migraine component.1 This head pain is partly due to trigger points in the shoulder, neck, and head muscles.
Balance Problems – Balance confidence is greatly reduced in people with fibromyalgia.Walking patterns are altered and the odds of falling are increased.
Itchy/Burning Skin – Your skin may look normal or it may have itchy red bumps similar to hives. Burning pain, similar to a bad sunburn, is also common in fibromyalgia patients.
Numbness and Tingling sensations in your extremities
Swelling Sensations—feeling as though one’s limbs are made out of gelatin
Burning Skin—just like a bad sunburn, despite no redness or visible rash
Sensitivity to Loud Sounds (you are always asking family members to turn down the volume)
Odors bother you much more than they do everyone else (your sense of smell is heightened)
Bright Lights bother you, maybe even contributing to your headache, especially if you are walking in a colorfully lit shopping mall
Dry, Burning Eyes—sometimes they hurt so badly, they burn, but your doctor can’t find anything wrong with them and has ruled out medication side effects
Sensitivity to Tastes


Denise said...

Bless you dear, praying for you.

His grace is sufficient. said...

Yes, it is hard to tell others how you really feel unless they have experienced it themselves. Fibro acts similarly to MS in that it shares some of the same symptoms. You are in my prayers Michelle.

Michele Williams said...

So true. We can pray for each other.

Donetta said...

just having a reason stops those feelings of despair
love ya